On Saturday 31st August myself & 2 friends are taking part in TrekFest The Peaks which is a 20km hike starting off in Castleton.
This is to raise funds for Alpha-1 Awareness which my lovely best friend Lora’s beautiful baby boy Alfie has recently been diagnosed with at 8 weeks old.
Alpha-1 is a genetic condition and Alfie produces a different form of protein in his liver. This means that proteins can get trapped in his liver and not be carried on to other parts of the body like they should do & in later life can lead to liver or lung disease.
I had never heard of this rare condition before but it is something that little Alfie will now live with for the rest of his life, there is no cure or treatment.
By kindly sponsoring myself, his mum Lora & our friend Laura it will help Alfies family & many other families get the support they need.
Currently Alfie is doing brilliantly & will be regularly monitored but for his parents it is a big unknown as to what the future will hold for there little boy.